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welcome to the
TARLOV CYST SOCIETY
Empowering Patients, Raising Awareness, and Advocating for Change
Welcome to the Tarlov Cyst Society, a place where patients, families, healthcare providers, and advocates come together with one shared purpose: to raise awareness, advance understanding, and improve the lives of those affected by Tarlov Cysts.
Tarlov Cysts—fluid-filled sacs that form along the spinal nerve roots—have too often been misunderstood and dismissed as "incidental findings" with no clinical significance. Yet, for those living with symptomatic Tarlov Cysts, the reality is far different, as research has shown that these cysts can cause debilitating symptoms that affect every aspect of life.
Join In The Conversation
Cultivating Caring Communities
The Tarlov Cyst Society offers multiple ways for visitors and members to communicate. Join in the conversation through our Groups or by commenting on one of our many Blog posts.
If you have a story or information that you think should be shared, please contact us at info@tarlovcystsociety.com
Join in the conversation and have your voice heard!
Get Engaged
You Can Help Us Succeed In Achieving Our Mission
Disclaimer
The Tarlov Cyst Society website is created and maintained by members of the Tarlov Cyst Society. The information provided on this website is for informational and educational purposes only and should not be interpreted as medical advice, diagnosis, or treatment.
This website shares information based on peer-reviewed medical research, expert publications, and the collective experiences of patients. While we strive to ensure the accuracy and relevance of the information provided, medical knowledge is constantly evolving, and individual healthcare decisions should always be made in consultation with a qualified medical professional.
The inclusion of medical studies, research articles, or treatment discussions does not constitute an endorsement or recommendation of any specific medical approach. Patients should consult their healthcare providers before making any decisions regarding their medical care.
If you have questions about the information shared on this website, please contact us at info@tarlovcystsociety.com.