Becky Chandler-Berry’s Story
Becky Chandler-Berry, MDÂ Â
My tailbone pain began in 2019 and left me barely able to sit on the medical stool in my office while I saw patients.
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Zdenko’s Story
I believe I have symptomatic Tarlov cysts, because I have fluctuating sacral and perineal dull pain, worsening with longer walking, standing, banding and sometime burning sensation on the back of my legs and on my soles. I also have a history of acute low back pain too, which may be connected with (or completely caused…
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When Systems Fail: Jodey Whiting’s Story and the Danger of Dismissing Tarlov Cyst Disease
When Systems Fail: Jodey Whiting’s Story and the Danger of Dismissing Tarlov Cyst Disease On February 21, 2017, Jodey Whiting died by suicide—just two weeks after the UK Department for Work and Pensions (DWP) stopped her disability benefits. A recent second inquest confirmed what disability advocates have long warned: systemic failings by government and healthcare…
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Patient Experience: The Reality of Living With Tarlov Cyst Disease
Becky’s Story – Imagine living in relentless pain, knowing exactly what’s causing it, yet being told time and time again that it’s not real. This is the reality for thousands of Tarlov Cyst Disease patients worldwide—people dismissed, gaslit, and left to navigate a broken medical system that refuses to acknowledge their suffering. Understanding Tarlov Cysts…
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