When people visit the Tarlov Cyst Society website, they often see educational articles, research updates, physician information, patient resources, and advocacy campaigns. What they don’t always see is the person working behind the scenes to help make it all happen—or the questions that guide every decision we make. As the Tarlov Cyst Society Founder, I…
For years, people living with Tarlov Cyst Disease (TCD) have been forced to navigate a medical landscape filled with confusion, dismissal, and old assumptions that refused to die. Many of us know the script by heart: “Your cysts are incidental.” “They don’t cause pain.” “There’s nothing more we can do.” Meanwhile, research tells a very…
Living with Tarlov Cyst Disease (TCD) can feel isolating, especially when you’re dismissed by doctors or told your symptoms are unrelated. But you are not alone—and you don’t have to navigate this journey without help. That’s why we’re proud to introduce the “Get Support” section on the Tarlov Cyst Society website—a centralized hub of information, resources, and…
We’re thrilled to announce that the Tarlov Cyst Society has officially been approved by the Canada Revenue Agency (CRA) as a registered charity! Our Charitable Registration Number is: 799489968RR0001 This recognition is more than just a legal designation—it’s a major step forward for our mission to support, educate, and empower individuals living with Tarlov Cyst Disease…
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