Heather Forgey, RMT, R.Ac., BSc

Research & Patient Advocacy Advisor

Heather Forgey serves as the Tarlov Cyst Society’s Research & Patient Advocacy Advisor, combining clinical experience, scientific training, and lived experience with Tarlov Cyst Disease.

With more than a decade of experience in massage therapy and acupuncture, Heather has supported individuals living with chronic pain and complex medical conditions while pursuing advanced studies in psychology and health science research. She holds a Bachelor of Science degree with a minor in Applied Statistics and has formal training in Research Ethics.

Drawing on both her professional background and personal experiences as a patient, Heather helps advance patient-informed research initiatives and strengthen connections between scientific evidence and patient care.

Through her work with the Society, she supports efforts to improve understanding of Tarlov Cyst Disease while ensuring patient voices remain central to research, education, and advocacy initiatives.