Privacy Policy

Last Updated: August 2026

Our Commitment to Privacy

The Tarlov Cyst Society respects your privacy and is committed to protecting your personal information.

Information We Collect

Depending on how you interact with our website, we may collect:

  • Name
  • Email address
  • Mailing address (if provided)
  • Messages submitted through contact forms
  • Newsletter subscription information
  • Donation information (processed securely by our donation platform)

We also collect anonymous website usage information such as browser type, pages visited, and device information to improve the website.

How We Use Your Information

We use information to:

  • Respond to inquiries
  • Provide support and educational resources
  • Send newsletters (only if you subscribe)
  • Process donations
  • Improve our website
  • Share organizational updates and events

We do not sell or rent your personal information.

Cookies

This website uses cookies and similar technologies to improve your browsing experience and understand website usage.

You may disable cookies through your browser settings if you prefer.

Third-Party Services

Our website may use trusted third-party services, including:

  • Zeffy (donations)
  • MailerLite (email communications)
  • Google Analytics
  • Social media platforms

These providers have their own privacy policies governing how they collect and process information.

Your Rights

You may request access to, correction of, or deletion of your personal information by contacting us.

Changes to This Policy

We may update this Privacy Policy periodically. The latest version will always appear on this page.

Contact Us

If you have questions about this Privacy Policy or how your information is handled, please contact:

Email: info@tarlovcystsociety.com