Tarlov Cyst Disease Specialist List

We know finding a knowledgeable healthcare provider can
be overwhelming. This directory was created to help
patients identify clinicians who have experience with
Tarlov cyst disease.

Important For Patients

This directory is provided as a community resource to help patients identify healthcare professionals with experience in diagnosing or treating Tarlov cyst disease. While the Tarlov Cyst Society strives to keep this information current, we do not endorse or recommend individual providers. Every patient’s situation is unique, and treatment decisions should always be made in consultation with your healthcare team.

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For Medical Professionals

If you’re a medical practitioner interested in learning more about how you can provide informed Tarlov Cyst Disease care, please contact sherri@tarlovcystsociety.com, and she’d be happy to connect you with specialists willing to help you learn more about the research driven realities of Tarlov Cyst Disease.

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Dr. Kirsty Hamilton, Sydney, NSW (Will do phone consult)
https://centralneurosurgery.com.au/drkirstyhamilton/
 
Dr. Yannis Sergides, Sydney, NSW (Will do phone consult)
https://sydneyspinesurgeon.com/
 
Dr. Timothy Steele, Sydney, NSW (Will do phone consult)
https://www.drtimothysteel.com.au/ 
 
Dr. Gert Tolleson, Brisbane, Queensland (Will do phone consult)
https://www.bssq.com.au/

Dr. Ricky Rasschaert, M.D. Neurosurgeon
Head of Department at AZ Rivierenland
Antwerp, Belgium
Dr. Rasschaert can be reached by mail and email, while medical imaging can be sent through WeTransfer
Email: ricky@dr-rasschaert.be
Commonly treats patients in Belgium, the Netherlands, Northern France, and the UK 
Mailing Address:  Boniverlei 28
                                2650 Edegem
                                 Belgium​

Alberta
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Spine Triage and Access Clinic Foothills Medical Centre, University of Calgary 
Phone – 403-944-1854 (Press 7 for Spine Triage Clinic)
Fax – 403-283-2270
University of Calgary Website
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British Columbia
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Dr. Navraj Heran, Neurosurgeon
Spine Clinic, Royal Columbian Hospital
www.drnavrajheran.com  
Phone: 604 520 1120
 
Ontario
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Dr. Kieran Murphy, Interventional Neuroradiology
Toronto Western Hospital
Toronto kieran.murphy@uhn.ca
001 416 603 5800 Extension 2393
https://www.uhnresearch.ca/researcher/kieran-murphy

Dr. Frank Feigenbaum – AIMIS SPINE
Nicosia, Cyprus
https://aimis.com/international/
Visit their website and submit your MRI for review to get the assessment process started

Dr. Georges Zollner, M.D. – Interventional Neuroradiologist Department of Neuroradiology
The University Louise Pasteur, 67098 Strasbourg, CEDEX,
Strasbourg, France

Yunus Kuntawi Aji– Neurosurgeon
Mayapada Hospital Kuningan – South Jakarta, Indonesia
https://mayapadahospital.com/find-doctor/detail/dr-yunus-kuntawi-aji-mkedklin-spbs

Dr. Paolo Marcetti, M.D. – Neurologist with specialty in Pain Management

delll’ Ospedale San Raffaele di Milano Milan, Italy
Phone: 011 39 02 2643 3206

Kim, W Choll M.D. PH.D, Orthopaedic Surgeon 
Excel Spine Center
www.excelspine.com
6719 Alvarado Road, Suite 304, San Diego, CA 92120 
Phone/Text: (619) 344-6918
Fax: (619) 333-6029 
 
Dr. Frank Feigenbaum, M.D. Neurosurgeon
Feigenbaum Neurosurgery P.A. 
Energy Square 1, 4925 Greenville Ave., Suite 1307 Dallas, TX 75206
214 351 8450
https://frankfeigenbaum.com
 
Dr. Rudolph J. Schrot, MD MAS FAANS. Neurosurgeon 
Sutter Medical Group 2800 L Street, Suite 500
Sacramento CA 95816
Phone: 916 454 6850 or 1 800 250 3208 
Contact Mindy Watkins 916 454 6850 
https://www.sutterhealth.org/services/back- spine/tarlov-cysts
 
Dr. Fraser C. Henderson, Sr. M.D. Neurosurgeon 
The Metropolitan Neurosurgery Group LLC 
1010 Wayne Ave. Suite 420 Silver Spring, MD 20910
Contacts:
For appointment call Tatiana at 301-654-9390
For technical questions call Vivienne at 301-557-9049 
http://metropolitanneurosurgery.org
​
Dr. Timothy F. Witham, MD – Spine Surgery/Neurosurgery 
The Johns Hopkins Hospital
1800 Orleans St, Baltimore, MD 21287
Phone: 410-955-5000
https://www.hopkinsmedicine.org/
​
Khan, Majid Aziz MD
The Johns Hopkins Hospital
Interventional Neuroradiology
601 North Caroline Street  – Floor 7
Baltimore, MD 21287
Phone: 1-410-614-2227
https://www.hopkinsmedicine.org/interventional-neuroradiology
​​
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Dr. William C. Welch, MD, FACS, FICS, Neurosurgery
Penn Neurosurgery Pennsylvania Hospital
Pennsylvania Hospital
Spruce Building, 3rd Floor
801 Spruce Street
Philadelphia, PA 19107
A facility of Pennsylvania Hospital
1-800-789-7366
​
Dr. Wouter I. Schievink, MD. Neurosurgeon
Specialty: Neurosurgery | CSF Leak Program | Spontaneous Intracranial Hypotension (SIH) / spinal CSF Leaks
Cedars-Sinai 
Neurosurgery Division – 127 S San Vicente Blvd Pavilion, Suite A6600, Los Angeles, CA 90048
Clinic/Program: Cedars-Sinai CSF Leak Program
https://www.cedars-sinai.org/locations/neurosurgery-102.html
Phone: (310) 423-7900
Email (program inquiries): Wouter.Schievink@cshs.org